About the Student Advocacy Fund
The goal of the PKDF Student Advocacy Fund is to provide economic resources to students with Pyruvate Kinase Deficiency (PKD) and their families, enabling them to hire a lawyer or special education advocate to participate meaningfully in the Individualized Education Program (IEP), 504 Plan process or exercise their right for representation. This fund is created to help students with PKD to receive the education they deserve without feeling punished for missing school or practices due to their chronic illness, build self-confidence, and enhance their self-esteem.
Eligibility criteria:
Applicants must be an elementary or post-secondary education student.
If under age 18, parent/guardian contact information required.
Applicants must submit the Diagnosis Verification Form, completed and signed by their M.D.
Lawyer/Advocate representation information required. If obtaining representation is pending, please provide current status in the application. Monies will be released directly to your representative and your application will be in pending status until information is received.
Applications will be reviewed once all information is received and in the order that fully completed applications are received.
For questions regarding the fund or application process, please email PKDF at info@pkdf.org.