PKD Education
Find an Expert PK deficiency hematologist near you
If you’re looking for a hematologist with expertise in PK deficiency, check out this list of experts. Nothing near you? Look for centers that treat people with Sickle Cell Disease or Thalassemia, two similar hemolytic anemias. Doctors who treat patients with these diseases should be familiar with PKD. If they’re not, find an “ally” hematologist who is willing to learn about the current PKD guidelines and treat you or your child according to best practices.
International PKD Guidlines
PKD Fast Facts for Patients and Supporters
Understanding PK Deficiency Brochure (printable pdf)
Information for Caregivers Brochure (printable pdf)
A comprehensive publication on nutrition in two inherited haemolytic anaemias; thalassaemia and PKD, aimed at offering a critical review of existing knowledge, benefiting both haematologists and dietitians in managing patients with these conditions. (printable pdf)
White Paper - Pyruvate Kinase Deficiency - Reflections on the Patient Experience to Support Treatment and Care
Voice of the Patient Report 2019 (printable pdf)
Eligibility Criteria for PK Deficiency Gene Therapy
Overview of Iron Overload in PK Deficiency
Prevalence of PKD in Western Populations