Community and Support
PKD Support Networks
Know PK Deficiency
The Know PK Deficiency Facebook community is sponsored by Agios Pharmaceuticals, Inc. to help raise awareness of the rare disease pyruvate kinase (PK) deficiency.
People with Pyruvate Kinase Deficiency
Patients and parents are supporting one another by sharing the knowledge they have accumulated from their experiences with the hereditary pyruvate kinase deficiency (PKD).
Thrive with Pyruvate Kinase Deficiency
The mission of Thrive with Pyruvate Kinase Deficiency (PKD) is to provide education and support for PKD without judgement.
Pyruvate Kinase Deficiency Awareness
We are here to promote awareness of Pyruvate Kinase Deficiency, a rare form of Hemolytic Anemia
Know PK Deficiency - Living with PKD Video Series featuring patients stories - Youtube Channel
Taking Control: Gaining Independence as a Young Adult with a Rare Disease (printable brochure)
Robyn Silverton and her life with PK deficiency - Video